Recent high profile media reports have documented the issues with timely delivery of chemotherapy to a number of children in Ireland. The response to these issues by the Taoiseach was unhelpful and insensitive to the children involved and their families.
This week marks the start of Childhood Cancer Awareness Month which takes place each year during September. The Light it Up Gold Campaign was first introduced to Ireland in 2013 by a group of parents of children with cancer, who went on to set up Childhood Cancer Foundation. Since then, the charity has been leading the annual campaign in Ireland, asking buildings and landmarks across the country to light up gold and show their support for families affected by the disease.
Childhood Cancer Foundation is delighted to see that “Dinutuximab Beta”, an innovative immunotherapy drug for the treatment of High Risk Neuroblastoma, has been approved for reimbursement in Ireland. To date, this has only been available as part of clinical trials. This ground breaking drug will now become part of the frontline “standard of care” for Irish children with High Risk Neuroblastoma. This puts Irish children on a par with children receiving the most up to date front line treatments available across the world.
Childhood Cancer Foundation was delighted to attend a recent meeting of stakeholders, at the Irish Cancer Society, to collaborate on shared issues of concern such as the need for:
We are proud to be a member of the newly formed Children in Hospital Ireland (CHI) Network for Childhood Illness Group.