News & Events

Have Your Say!

                                              

We are asking for contributions from parents and anybody concerned with childhood cancer to give Childhood and Adolescent Cancer a strong focus in the Consultation on the EU Beating Cancer Plan.

As members of CCI-Europe (Childhood Cancer International Europe) Childhood Cancer Foundation Ireland, CanCare4living and CanTeen Ireland together with medical professionals, other organisations and individuals are asked to encourage as many responses as possible to ensure that Childhood and Adolescent Cancers will be noticed by EU policy makers to ensure better awareness, access to innovative treatments, research, eradication of inequalities, care for survivors and financial supports. This is an important opportunity to have your voice heard at EU level

If you think you can help, please do the following before 11pm Irish time 7th May 2020.

1. Register on https://webgate.ec.europa.eu/cas/eim/external/register.cgi (confirmation email may take up to 24 hours-so you are encouraged to create an account well in time to allow completion of the questionnaire before the deadline.

2. Access the EU Cancer Public Consultation https://ec.europa.eu/…/i…/12154-Europe-s-Beating-Cancer-Plan

CCI-Europe, SIOPE, and PanCare, (the Organisations representing parents, survivors and the medical professionals working in the field of childhood cancer) have adopted a collaborative approach to the consultation and have developed a template of replies with agreed key messages, which you can use and add to if you wish.

The more completed questionnaires received, the more importance Childhood and Adolescent Cancer will receive in the EU Beating Cancer Plan.

Click HERE for a copy of the questionnaire.

The number of submissions matter – this is your chance to be heard - Together we can make a difference.

https://ccieurope.eu/about/

https://siope.eu/

https://www.pancare.eu/…/initiatives/12154-Europe-s-Beating…
https://ec.europa.eu/…/i…/12154-Europe-s-Beating-Cancer-Plan

 

St John's Ward Visit

By chfadmin Wednesday, 6th November 2019 | 0 comments
Filed under: News, Events, Hospital.
Last week Childhood Cancer Foundation had a fantastic visit to St John's Oncology Ward in Children's Health Ireland at Crumlin. The children were delighted to see some very special visitors who were there to deliver balloons, comics, sticker books and sweets.

New drug approved for the treatment of High Risk Neuroblastoma

By chfadmin Monday, 15th July 2019 | 0 comments
Filed under: News, Hospital, Awareness, Advocacy.
Childhood Cancer Foundation is delighted to see that “Dinutuximab Beta”, an innovative immunotherapy drug for the treatment of High Risk Neuroblastoma, has been approved for reimbursement in Ireland. To date, this has only been available as part of clinical trials. This ground breaking drug will now become part of the frontline “standard of care” for Irish children with High Risk Neuroblastoma.  This puts Irish children on a par with children receiving the most up to date front line treatments available across the world.

International Childhood Cancer Day 2019

By chfadmin Tuesday, 19th February 2019 | 0 comments
Filed under: News, Events, International Childhood Cancer Day, Hospital.
In honour of International Childhood Cancer Day on 15th February, we were delighted to organise a visit to St John's Ward with some very special guests. We were joined by Batman, Wonder Woman, Tinkerbell, Star Wars and Harry Potter characters. The children were delighted to meet all of the characters and receive some character balloons, comics and sweets! A big thank you to Emerald Garrison for taking the time to meet the real superheroes of St John's Ward.